I’ve had a few questions and comments recently about PANDAS. I wanted to put together a collection of resources for PANDAS and PANS so that families, teachers, therapists, grandparents, and caregivers can easily find everything they need to know about this disorder. The links below are sites that describe more about PANDAS and PANS, including diagnostic information, signs and symptoms of PANDAS, information on clinical trials, and places to find more help. PANDAS/PANS can be a confusing diagnosis, happening overnight and with dramatic and substantial outcomes. Use the information below as a starting point when looking for information on PANDAS.
This information is not meant to be a diagnostic tool or means for intervention. It is essential that concerned individuals seek consult from the child’s pediatrician. This information is strictly a collection of information and a starting point when seeking out resources.
What is PANDAS?
PANDAS is an acronym standing for pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections. The disorder appears suddenly following a strep infection like strep throat or scarlet fever and results in obsessive compulsive disorder, behaviors, tics, and similar symptoms.
PANS, or pediatric acute-onset neuropsychiatric syndrome, refers to children with sudden onset of obsessive–compulsive and other neurobehavioral symptoms, including children with PITAND (pediatric infection-triggered autoimmune neuropsychiatric disorder), children with PANDAS, and children with exacerbations that are due to environmental or metabolic triggers.
Symptoms of PANDAS and PANS
There is not a predictable sequence of symptoms, but a child with a diagnosis of PANDAS/PANS may present with the following symptoms:
How to Help a child with PANDAS/PANS:
Books about PANDAS and PANS:
is a guide for parents of children who are experiencing PANDAS/PANS and are seeking information related to behaviors, treatment interventions, therapy, support, and interventions.
is a book that parents can work through with their kids as they struggle to explain what exactly PANDAS is and how it’s affecting the child. This workbook is a resource for identifying a individualized strategy plan using the book’s journal sheets and strategy plans.
Intervention. OT Practice, 14-19.
PANDAS—Questions and Answers. (2016, Sept) Retrieved from: https://www.nimh.nih.gov/health/publications/pandas/index.shtml